Journal Entry #1~
I've decided to add a journal to my blog. It makes sense to me since I am partly using this blog as a way to vent about my own issues and to help others with similar problems. Boy do I have a lot of issues! I will use the "Health Topics" label for more informative posts.
Here is a little background. I won't go into too much detail about it and save that for an actual Health Topic post.
*Chronic pain following a two level ACDF for herniated discs getting cozy with my spinal cord.
*Fibrobromyalgia/Chronic Fatigue
Pigmentary Dispersion Syndrome in both eyes. Ever heard of it? Me either! Its kind of rare.
*My most recent diagnosis is kind of like a mystery solved to me. Its called "Idiopathic Hypersomnia" and another topic I will explain later. I'm tired 24/7 no matter how much or how little I sleep. I will share the details about testing for this later as well. I have pics too! ;-)
*Finally the blah, blah, blah stuff that comes with getting older....not old, just older. Can someone please tell my body this!
Ok now what? Just kidding. I have had a bit of a block though. I'm worried that these journal posts are basically going to be the same every time I do one. Let's see, my neck hurts and I'm super tired. When I first started this post I just did the background stuff and I was having a decent day. Today is not the same day. My neck is awful and is giving me a headache. I've been super tired the past couple of days and have had to literally take my "hey, wake up!" med just to keep my eyes open.
I have also been having some new and worsening symptoms for a couple of months or so. I told my pain doctor and he wants me to get another MRI, but of my thoracic spine this time. It will have to wait since we have a huge deductible. I'm having tingling sensations in my middle back/spine area and it's pretty strong at times. I also have a spot that I had my hubby help me pinpoint and take a picture of so I could show my doctor as well. It is extremely painful when I move or touch it in the wrong way. I'm worried that the level below my fusion (c4-5 to c5-6) could have something going on. If not a disc issue, then what?
My thoughts on this blog are bothering me as well. I look at other blogs and think that this one is just silly. I have to remind myself that for one I just started it and I'm learning. The other thing is that this blog is not just a beauty blog. I'm not a beauty guru. I just like makeup. My main goal with this blog is to help someone somewhere with things that we share in common. When I was researching ACDF surgery before having mine I couldn't find a blog like this. I actually found more blogs on the foot surgery I had maybe because that is more common.
Anyways, this is my first journal post and I'm sorry that it turned into a negative one. It didn't start out that way. I promise not to be a downer every time I write about myself.
It's hard to put a number on pain. I would tell my doc I'm at a 6 or 7 today. I would rather just draw a sad face and hold it up! |
This is what caused everything to change... |
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